Friday, August 16, 2013

Giving Back

I attended a "Living Well with chronic illness" through my employer and health region a few months back. I completed the course feeling empowered and with a strong desire to help others. 
I remember the beginning months of my diagnosis and how I felt.  Helpless, afraid, powerless, alone. 
I want to make those months a little easier for someone else. I want to make the dark moments a little less dark for them. 

I agreed to take the peer training to facilitate this course for others living with chronic illness. I think not only will it keep me in check and using the tools I learned, but it will also give me a sense of purpose. 
If I can make things even just a little easier for someone going through a dark and hard time I want to do it. 
Even if it is as simple as someone sitting in the course realizing, "I am not alone, there are others with similar struggles and feelings". 
Before I learned anything in this course, just sitting in a small group listening to others share, I already felt validated. 
I have always had a wonderful and positive support system with my friends and family.  But while they are always supporting they thankfully could never relate. Sitting next to someone who can't feel their hands, has balance issues, tears up thinking about the unpredictability of their future has calmed me and made me stronger. 

I have signed up to the peer instructor course so that I can help people out of the dark and times and let them know not only are they not alone, there are people who can relate, show you tools to make things easier and give you hope. 

Wednesday, August 14, 2013

Our Family....

My favourite quote, which adorns many of the walls in our home is:

Our family is a circle of strength and love,
With every birth and every union the circle grows,
Every crisis faced together makes the circle stronger. 

After the truly wonderful memories we have made on our family vacation my thoughts are on my family and how blessed I am. 

Just before this vacation our family faced a few crisis'. My 17 year old made some really bad choices which luckily did not end with the serious consequences that it could have. It was a good reminder than she still is a teenager and she still has her lessons in life to learn. This crisis also made me realize that being a teenager back in my days wasn't as scary and complicated as it is now. 
I was disappointed in her choices, but through all my anger and disappointment I kept repeating to her how much she was loved. In the midst of this crisis when I saw her tears and the fear in her eyes I felt the need to remind her of the strength and love that our family is made up of. 

Our family circle is very strong. I can feel the strength during the crisis moments just as much as I can during the wonderful moments filled with joy. I find myself being thankful and appreciating this family circle more and more. 
I wonder if it is because I am getting older and appreciating the good things in life more?  Is it maybe that with age comes wisdom and I realize that the little things in life are really the big things. 

Here's a list of a few of my little things;

My children's infectious giggle. 
The funny things that my children say that bring a smile to my face. 
The memories created captured by my heart but not my camera. 
A random hug and kiss. 
All the wonders of new experiences through the eyes of my children. 
Seeing my traits and characteristics in my children. 
Walking hand in hand with my husband. 

I think it is going to be hard to top this near perfect vacation spent with family and friends.  I can't wait  to try though. 



Friday, August 2, 2013

Extremes

My blogging has been quiet for the past month.  Normally the quietness is either from me being busy and loving life or me dealing with new stressors.  This time it is a combination of both. 
I have had my MS tested with stress I could never have imagined I would be dealing with.  But I am happy to report that I was able to keep my symptoms in check and I did not have an attack.

Last Saturday I sat with my 17 year old daughter in the exact same room in the emergency where I went when I was dealing with my unknown symptoms that would later be revealed as Multiple Sclerosis.  I was proud looking back from where I came from to where I am today.  I am also more accepting of this disability and learning to appreciate my life's blessings and make the most of life.

While I am glad I have come so far, there are still dark thoughts.  But I think that is maybe normal for someone with an incurable and unpredictable disease.  I need to find a balance between the darkness and the blessings.

This morning in the shower I found myself smiling at the thought of my good life.  Despite all the recent stressful situations I can still feel  the blessings and good in my life.  I am thinking that is one of the reasons I have managed to keep my disease in check and didnt suffer an attack when the stress was really high. 

I know things can go from one extreme to the other, but as long as I can have faith that this too shall pass I can level out these extremes.